How can we better manage the symptoms of Parkinson’s disease (PD) together? Whether you have PD, are touched by someone who has or has had PD or you want to help, we invite you to participate in this study. Become a research partner!
Sage Bionetworks (nonprofit) is proposing a new approach to monitor health in PD using a mobile app. We want to understand why some people with PD have different symptoms than other people with PD, why a person’s symptoms and side effects can vary over time, and what can be done to help manage these differences in symptoms day to day.
Living with Parkinson disease means coping with symptoms that change daily. Yet these daily changes are not tracked frequently enough. New technologies allow people to record and track their health and symptoms in real time. This study, developed in concert with our advisory board, will monitor individual’s health and symptoms of PD progression like dexterity, balance and gait using questionnaires and sensors via the Parkinson mPower mobile phone application and wearable devices if available. By participating in this study you will help us learn the range of PD symptoms and find out whether mobile devices can help measure PD progression and manage these symptoms better. In this unique study you will be a partner in the research process.
This study is sponsored by Sage Bionetworks, a 501(c)(3) nonprofit research organization, with funding from the Robert Wood Johnson Foundation. It was developed with guidance from our advisory board (Drs. Karl Kieburtz, Ray Dorsey, Caroline Tanner and Bastiaan Bloem) and Dr. Max Little.